I wanted to let you know how much the book "Be brave little one" means to our family and tell you the story of our brave little one.
Our son came out too early and too small. I had not completed my second trimester yet and he weighed barely over a pound. This was supposed to be a no complication pregnancy and he was our first born. We were looking at months of NICU stay ahead of us. Friends and family sent us gifts and care packages - one of which had the book "Be brave little one"
We named him "Viren" - it means 'a brave warrior'. The doctors, nurses and therapists at the hospital were surprised at how well he was developing. He was thriving without much support. A baby this young usually does not have lungs developed and here he was breathing atmospheric air. They said he was very strong and had an incredible amount of energy. Every day he had a new challenge - brain scans, blood transfusions, low blood pressure etc. Almost the very next day it would be fixed. He was fighting against everything the universe was throwing at him. And my husband would read the book everyday to him asking our little one to be brave. To be brave to keep going when going is tough
Then things started getting rough. The universe was throwing more difficult hurdles at him. He was trying and fighting but as a mother I could see he was getting worn out. One night within a matter of hours he developed a hole in the lungs and a hole in the intestines. Two independent and extremely fatal issues. If it had been one of them, I am positive that the able doctors would have helped my little warrior. The surgeries would have saved his life but with life long implications. He was looking at a really difficult life ahead with the quality of life highly compromised. That night he was brave to be still because he had had enough.
Somehow the essence of the book changed . It meant something when he was fighting - about fighting through the ups and downs. It now means something else - about being brave and knowing your limits. Both the meanings beautiful. My husband keeps telling me that the book is for us as well. There is a third meaning for the new parents bereaving their only child - its time for us to be brave.
The book meant so much to us that we sent it along with him to forever be with him and remind him to be the brave little warrior he is.
I wanted to thank you for such a beautiful book and let you know how much it has touched our lives.